Saturday, October 18, 2008

Pumpkin Party

This afternoon we were invited to our uncle's house for hot dogs, smores and picking pumpkins. My sister and her kids came too and the kids got to search for a pumpkin that had each of their names carved into it. They had such a great time running around. Here are some pictures of the pumpkin part; I'll have to make another scrapbook to fit the rest of the pictures!
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Because I'm such an industrious blogger, here's another slideshow. I didn't bother taking out the duplicate pictures. It won't kill you to see them twice. Make sure you click on "full screen" (I paid for that feature, so you'd better use it!)
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Welcome the Newest Members


Last night we picked up our new kitties. I was planning on giving one to Egypt for her birthday, but the kids quickly became possessive about which one belonged to them. So now they are both mine :-) They are both female and very sweet. Holland made a little box for them to sleep in and put a sign on the bathroom saying they were sleeping and not to disturb. We are having fun watching them roll around together, and play under the couch trying to grab our feet. Cats are so entertaining.


Friday, October 17, 2008

Science Guy

Today was the last day of Holland's "fun with electricity" class at the co-op. He had a great time building circuits and lighting up little bulbs. The last experiment had me holding a balloon that was popped when the teacher made an electrical connection.

When we got home he was still so excited about having the circuits he built at home that he built this circuit that lit a bulb and made a pinwheel turn. Here's a short video I took on my camera.

Tuesday, October 14, 2008

Everybody On Your Toes

Today was just one of those weird days that you can't do anything about. It actually started last night when I got a call from Holland's psychiatrist at 9:30! We hadn't been in for awhile and I had asked him several weeks ago about possible med changes since we started the gluten-free diet. He called to say he'd had an opening and did I want it? It meant a lot of finagling because it was right when Romania needed to be picked up at the bus hub. I said I'd take it and I would call the receptionist in the morning to check on the time.



So at 9:30 at night, I call the only person that can help me out - a mom of one of Romania's friends at school. Would it be possible to have Romania come home with you? Sure, no problem. So in the morning I called the school to make sure they knew about the transportation change and also emailed his teacher. Whew. Then I called the doctor's office to confirm the time. "The doctor is not in today." Um. Exsqueeze me? He just called me last night to offer me this time slot. She said she'd email him, but was pretty confident that I had my pages mixed up.



Two hours after calling his cell and leaving a voice mail, the doctor called me and said "oops! I got my days mixed up". Oh boy. He had no idea how involved I already was in this ordeal. This meant undoing the transportation mess I'd created, and telling Romania he couldn't go to his friend's house. I called my friend and asked if she'd still be available for tomorrow afternoon? Yes, she would. Great. I offered to flip the deal and have her son come over to our house (as a little peace offering for all the trouble I'd - I mean the doctor - had caused). So I called back the school and explained that now to confuse the school even further, I needed Romania to come home on his regular bus and to boot, why not throw his friend on there too?



The boys had a great time running around in the backyard. And they also got to play legos, Rokenbok and a little Wii Star Wars. I even got Egypt to clean her room (gasp!). I told her the friend's brother was coming when his mom picked him up and would she like to show the boy her room? Yes - she would! Okay, then you should go clean up your room so he can see it. In 10 minutes it was spotless! Of course, most of it ended up in her closet, but lately I've been cleaning the same way.

Monday, October 13, 2008

Check This Out

Since we are being bombarded with talk of the upcoming election, I thought why not add one more potato to the pot. I don't get to listen to the radio much, but Michael Savage has a great radio program that is really addressing some important points about our two stellar candidates. Since the mainstream media is controlled by those leaning towards the liberal agenda (that was tactful, right?), we don't get to hear much about what is really happening with current events. Here's a link to his website and many eye-opening articles on information you probably won't hear on Good Morning America tomorrow.
Michael Savage

Friday, October 10, 2008

No Child Models Here

Egypt's 4th birthday is coming up and I always try to do pictures to mark each birthday. Since Romania had school off today, I thought I could get a few pictures with all three of them. I do not know what I was thinking. Why did I think my kids would do what they were told in a photo session? Why did I think they wouldn't touch things, roll on their brother, make faces, laugh their heads off or walk out of the room? So any fear you had that I was going to subject my kids to the rigors of child modeling is out the window. Seriously. How do they get kids to stand still for pictures? Do they fire you if your kid doesn't stand the right way? I always thought it would be fun to get Egypt in the hanna andersson catalogs because she's got that Scandinavian look. You know, earn a few extra bucks for college or pay some bills. It ain't happenin'. I didn't even stay to see the pictures on the computer.

Oh and for my headache of a picture session I drove to a McDonald's drive through and ordered a drink and fries for me and Holland.

Thursday, October 9, 2008

I Heart Electricity

We had dinner at my in-law's house on Tuesday to celebrate grampa's 79th birthday. The kids got to bed kind of late and I knew I'd be waking at least one up in the morning to get to the bus on time. It was Egypt. I barely got her dressed and was later thankful that I took the time to do this. After waving good-bye to Romania, I chatted with another mom and then headed back home. It was now that the garage door opener decided to stop working. It's been fussy lately, sometimes working, most of the time not. We can never seem to get out to Sears to buy a new battery. To make it all the more comical, I didn't have a house key on my key chain. And I had also forgotten my pager. Couldn't send an email to super-hero, couldn't even call my sister. So we did what any normal person locked out of their house would do: we went to Target.

I had to kill about an hour and a half before Sears opened. So we wandered around Target, picking up Halloween candy, kitchen scissors and tape. Finally it's 10 so we drive over to Sears. Showed the salesman the remote and he picked up a battery and handed it to me. I was able to pry open the thing before we left and put the new battery in. We get home and it's probably 10.45. More comedy: the door still wouldn't open. Holland had eaten a rice cake for breakfast and Egypt didn't even get anything before we left. The only way I was going to get in touch with super-hero was to email him from my sister's house. He answered pretty quickly and said he'd meet us at 11.30 at a store halfway between us. My sister gave my kids a few things to eat and as I was leaving asked her to reply to his message to say we were coming.

We got to the location and waited. And waited. And waited some more. Every 10 or 15 minutes I debated whether I should leave or not. If I left and missed him he would not be happy. Thirty minutes goes by. I'm thinking, 'he'd better have been in a car accident because 30 minutes is ridiculous'. The kids and I were so hungry, we opened the Halloween candy and started to eat lunch. Since Holland's diet now requires no gluten, I couldn't just run to McDonald's for something to eat. Finally at 12.15, he comes into the parking lot. He said he was waiting for my answer to make sure I was meeting him. My sister got sidetracked with her kids and doing an inventory for a new part-time job and didn't remember to reply until noon. I gave super-hero all the remote pieces and the batteries and he said he'd stop on his way home. We were locked out about 4 1/2 hours and after not having breakfast, Holland decided he wanted pancakes for lunch. So I'm exhausted from my morning of non-productivity and decide to let Holland build with Rokenbok in his room. His design turned out pretty cool. I'll have to get a picture before someone falls on it or something.

Oh yeah. We still cannot get the remote to work.

Tuesday, October 7, 2008

Not So Fast

We keep getting these bills from the car accident that Egypt and I were in back in February. I keep ignoring them because, well, I'm not paying them! I finally had to call the billing service to find out why it wasn't getting paid. She told me that the other insurance denied the claim. What?!? So, I dig through my paperwork and find the other person's insurance number, call and leave a message asking why they haven't paid. He calls back and says that my insurance needs to pay and then they will get reimbursed from the other insurance. He then asks if I'm still receiving treatment. Oh - I hate these questions! In the beginning I would get bugged at least once a week asking when my treatment would be done. I answered, "No, not right now." "OK. Good, then I'll go ahead and write up a report and close out your case." Ummm. Excuse me?!! I was actually able to think fast enough to realize what he was doing! I told him that I would not be closing the case until next February, a year after the accident. They are so sneaky, those insurance agents. I wouldn't be able to get anymore treatment if I had agreed with him. And if I had had kids around me, distracting me, I wouldn't even have realized that he was trying to close my case.

Monday, October 6, 2008

Yummy Pancakes!

I finally opened the pancake mix that I bought last week. The price could give milk or bread a run for their money. I figured it's about 30 cents an ounce. Which doesn't seem like a lot until you look at this piddly bag of 24 ounces and the recipe for one batch of pancakes says: "yields 6, four-inch pancakes". Wow. That's a lot. (I'm rolling my eyes). My griddle that my mom gave me (I just typed 'girdle' and had to correct that before moving on! Spellcheck is completely worthless.) has gone kaput. I can only cook one lonely pancake at a time on the stove in a skillet, but Holland was really craving pancakes. He ate 2 ricecakes for breakfast before we took Romania to the bus stop, so I figured I needed to do something more.

The brand is Pamela's and I think they are equal or even better in taste than these buttermilk pancakes I've been making lately (sorry gramma Nora!) The mix can be used for pancakes, waffles or even as a flour in any baking recipe. One of the tricks I'm learning about gluten-free cooking is that you have to spray the pan or griddle or iron that you are using before cooking. I made that mistake with the first two little pancakes I put on the pan. I usually don't spray a non-stick pan, but after scraping pancake off, I decided I'd better follow the directions.

Egypt ate three pancakes and Holland had two. He usually can barely finish one pancake, so this was great for him. I'm still trying to figure out how to fill him up. He ate constantly all morning while we were doing school. It's all healthy stuff, so not complaining, but sometimes I wish he'd just eat a pudding cup and get on with it!

Now I just need to get my hands on some black market Pamela's so we can afford to eat pancakes for dinner.

Thursday, October 2, 2008

Dining Out on Gluten-Free Pizza





Tonight was the night. October 1st. This really good pizza joint would be introducing their gluten-free menu. Holland was so excited. We picked Romania up from the bus stop, got Holland changed into his soccer clothes and met super-hero dad at the restaurant. Their gluten-free pizza came in one size, so Holland got a pepperoni pizza all to himself. Here he is enjoying his first dining out experience since being diagnosed with celiac. (I even tasted it and it wasn't that bad!)

Monday, September 29, 2008

Hooray for IEP's!

Today Holland had his ceramics class at his charter school. I only signed him up for one class a week. We're already doing a homeschooling co-op and the more I'm out of the house, the less school work I get done if I'm running around every day. I tried to get there a little early so I could make copies of his work for his work sample notebook. It wasn't enough time before class to figure out the copy machine, so we just sat on a bench outside the door to his class. I overheard one of the secreteries talking to the art teacher and picked up on key names (one of them being Holland's name). I figured out that they were talking about the woman who is now involved in his IEP and works for the school district. We had talked about her coming to observe Holland during his class so she could check on his behavior goals.

She's really nice, so I didn't mind at all. We actually have an annual review IEP meeting this Friday and we were able to discuss current goals and possible goals for this year. Imagine how surprised I was when she said "I think I'll just take all his behavior goals off. Is that okay?" Uh, yeah! She said he had met all his goals from last year and didn't see any reason to add more based on my observations and what she saw today. Yahoo! And what's even better is I get to write his IEP goals for reading, writing and math. How cool is that? I have all these great notes from the Language specialist evaluation last week and I'll be able to put down 'no phonics'; 'writing to read' through shared context, drawing about the context, labeling, writing and reading back what he wrote. I also started his picture dictionary. I used bubble letters and drew a small picture above the word and every time he needed to access the word for a reading comprehension workbook, he knew exactly which word it was. I'm so excited to see his progress!

Sunday, September 28, 2008

Who Cares About Oatmeal, Anyway?

Holland has been really wanting oatmeal. He used to eat it for breakfast or lunch or just a snack. But now since he can't have it, we've gotten more creative with his menu. Like this morning, for example. He was in a soccer tournament this weekend. He played two games yesterday and a game today. His lunch yesterday was a handful of almonds and chocolate chips and a juice drink. He said he wasn't that hungry, so I just let it go. When he finished the games, he did eat the rice bar I brought. He did not want the costco chicken that super-hero brought home, so he just had corn for dinner. I think he did eat another handful of almonds later on and maybe some popcorn.

This morning while I was getting the other two kids ready for church, I couldn't find anything to feed Holland. He had poured through the pantry and all he could find was gluten-free gingersnap cookies (which he ate). We are out of wheat-free cereal, out of eggs, can't have toast, forget pancakes. I was just stumped. Then I remembered I had a little bit of sherbet left for a fruit smoothie, so I made one really fast. Lunch wasn't much better. I had to make tacos (again. How many times is that now, in the last week?). He ate one and then went outside to play. Dinner was baked salmon, sticky rice and broccoli with fresh lemon. I really was in the mood for some dessert (we've stopped buying cookies, muffins, etc. We're on the South Beach diet and didn't even try!) I had returned all the gluten-free cookbooks and the boys were on the computer. So I just decided I would find a brownie recipe and make it. A couple months ago I bought two Martha Stewart cookbooks from costco: one is entirely cookies and the other is a seasonal cookbook. I found a brownie recipe, substituted my GF (gluten-free) flour mix I have already mixed up and added a few chopped pieces of Hershey's chocolate bar for a double chocolate brownie. The boys were so excited and I hadn't even told Holland it was gluten-free. I gave them eat a plate with a warm brownie and a glass of milk. He said it was even better than what I usually make, which is the boxed Hershey's brownie mix from Costco. Then I told him it was gluten-free and he couldn't believe it! I also had to tell super-hero to stop eating them and save some for Holland. He said he couldn't even tell they were different!! Wa-hooo!

Forget oatmeal. We have chocolate.

Friday, September 26, 2008

Language Evaluation

I got the report back from the Language and Learning specialist. I think it was totally worth the money, although I'm sure super-hero would disagree. She wrote some pretty interesting things about the way he processes information, how he uses language, his fine motor skills and speech.

"Motor development is typically viewed as a function of fine and/or gross muscle groups, with speech motor acts produced with fine muscle movements; and walking produced with gross motor movements. The central nervous system (brain and spinal cord) is necessary for these motor acts. Damage to the spinal cord affects the motor function at the peripheral level (limbs, trunk, etc.) but not at the cognitive, speech or language levels. However, damage to the cerebral cortex can affect not only the motor ability to physically perform an act but also the ability to consciously want to execute an act. Thinking about execution is a cognitive (cortical) function. Execution of cognitive motor acts is not only a function of the motor strips but also a function of the frontal lobe in concert with the temperal and parietal lobes. The temporal and parietal lobes provide information about the language that a person is able to put to a motor act. For example, a child sees the feet move up and down. An adult watching this movement says the child is "walking". The child learns that when the feet move up and down a certain way, that motor act is called walking. Conscious execution of motor acts is a language function."

She observed his fine motor skills when he drew pictures, played with legos and spoke words. But she said he had "overflow" of the motor acts. For example when he ate a snack he used his left hand to pick up the small pieces while his right fingers were moving in parallel ways. Also when he wrote with his right hand, his left fingers would move. The movements on the opposite sides of his body show a "shadowing" which is more typical of a young child. He has this "lateralized" movement that affects his connection of motor patterns to the space that the patterns are in. This was interesting: "His body is divided into two equal parts and his eye movements see the letters on both sides of his body but in opposite position. Likewise, he sees the letters upside down and right side up at the same time. This means that he cannot use letters for the sounds of words. But, he can feel the shape of what he sees so that if he can store an idea as a motor shape, then it has no letters, no directions, and he has a visual pattern attached to an idea that he can retrieve." When Holland was asked to write a word with his eyes closed, he was able to do it. Dr. Arwood said because he can store the idea as a motor shape and he has a visual pattern attached to an idea he can then retrieve the information.

This makes complete sense to me. Recently I started signing words to him while he was reading when he got stuck. Sometimes he would try to "sound" out the word, but most of the time he would sound out letters that weren't even in the word. When I added a sign, he would be able to retrieve the picture for it and know the word. So he is obviously using "pictures" he has in his mind to retrieve information, reorganize it and give it back. Dr. Arwood also suggested that I fingerspell in his hand for vocabulary words. That way he could feel what the word looked like.

Speech requires fine acoustic motor patterning. "He responded well to falling or rising intonation indicating that he could hear the paralinguistic tones." He also heard a distant phone ring and asked about it, which suggests that he can also attach meaning to sound patterns of everyday actions. "However, the complex fine motor movements of speech for longer phrases or sentences and for sounds that require rapid movements during production such as glides and some blends, are often problematic for Holland. This is typical of auditory processing issues. Auditory processing requires a neurological connection of acoustic with visual patterns. Holland can produce the acoustic patterns and the visual patterns but his learning system does not integrate the two types of patterns for auditory concepts." He will also run his words together when words become too complex and he lacks the sound segmentation. (She called this "cluttering").

Holland's language and cognition was evaluated and it was found that his concepts are represented in visual form. He can see single pictures and is beginning to make those pictures into short "movie" clips. But because his speech showed auditory processing difficulties, Dr. Arwood asked him an auditory question. "What do you do on a typical day?" He replied, "playing, do math, stuff like that." This reply showed no "sequence of time, time-based wording or an understanding of the time of these events. He does not use the time-based properties of language."

When he was asked to read a first-grade passage, he immediately used his mental pictures to tell the story even though he could not read 80% of the words. For example, he would say the fox wanted to eat a hen. The passage read, "He was looking for food....He wanted a nice fat chicken." "He could mentally see what the meaning of the print was even though he did not know the names of the words. This means that Holland has visual or pictured concepts mentally to which he can put some sound for speech but cannot use sound for developing the meaning of ideas."

She suggested that I have Holland draw what we've read, add the words to match the picture and label the people/objects in the picture. She also said it was important to include thought bubbles and word bubbles so he could create perceptual patterns. I asked if I should correct spelling while he was writing and she said definately. It takes an average of 40 times to spell a word correctly that was learned incorrectly. If he learns a word that is spelled wrong, it will take him so much longer to "unlearn" that and learn the correct spelling. Good advice for all those "inventive spelling" teachers out there! That's what I was taught in my teaching program. 'Let the kids sound out words and experiment with spelling.' I suppose that would work if 100% of your students were auditory learners. But I'd be willing to bet that more people are visual rather than auditory learners.

The other thing that we will be doing is making a picture dictionary. She had a paper with about 12 squares on it for writing a word and then "bubbling" it. I had been 'framing' the words before, but this was new. She actually outlined the word, like you'd see on a high-school dance poster! Then she would erase the letters, so just the outlined showed. She had an example of a whole sentence written this way. At first Holland was uncomfortable with all the lines, but when he was shown the 'bubble' sentence, he was able to read all the words! Amazing. He could see the shape of the word, rather than be stuck on what the letters represented phonemically. She also had a little box for what she called "glue words." These were all those words he got stuck on like; I, me, you, they, their, there, them...etc. She drew a small picture above the word. Like the word "go" she drew little feet so he would have a picture to connect to a concept and then be able to create meaning.

So now you'll be able to use all these great ideas if you have a more visual than auditory learner. You're welcome.


Wednesday, September 24, 2008

Projects For Everyone

So this year seems to be all about the projects. Holland made gliders to test differences in wing size; we made a bat house (which is for our next study in flying creatures); and today we did an art project based on "Fish is Fish" by Leo Lionni. He created a new fish/animal, did a background texture rub with crayon and then he wrote a story about his Fin-fox (body of a fish; head of a fox). He's also really enjoying his ceramics class on Mondays.

So today I needed a project. And since food has become a major focus lately, I decided we needed something we could all eat. Last night we had hamburgers and (store-bought) french fries. Holland didn't even mind that he ate his hamburger without a bun. (I even gave him some of my pop to make him feel better!) We had leftover patties today and Holland actually said that sounded good. But of course, all the french fries were gone. I found some russet potatoes in the pantry and decided I needed homemade french fries to go with my hamburger (and a tomato from my garden!) I peeled, sliced and soaked the potatoes for about 15 minutes. I cooked them for about 3 minutes, drained them, cooked the next batch and then cooked them a second time. They were soft on the inside and cripsy on the outside. Holland loved them. He was so excited that potatoes were not a forbidden food.

Tuesday, September 23, 2008

Little Breakthroughs

The past few days have been very hectic. Trying to figure out what to feed Holland with what's in my pantry. How to pack gluten-free food for soccer games or co-op days. I've bought many tiny bags of gluten-free snacks and a 24 oz bag of pancake mix. This puny bag of Pamela's cost me $6.89. I loved making pancakes and waffles and breakfast-y food. I've heard this is the best pancake mix (sorry Bob; no competition) but hope to be able to duplicate it if it's a success. Otherwise we're going to end up spending two or three times the normal amount on food.

It's not that he's a super-picky eater. Romania fits that bill more than Holland. He loves fruit and vegetables. He told the gastroenterologist on Monday that his favorite food was corn. Go figure. Corn. Not hot dogs. Or pizza. But corn. I'm also rediscovering the art of the smoothie. The best book is "Jamba Juice". This is the only way I can sneak plain yogurt into my kids. Their favorite smoothie so far is cranberry juice, strawberries, blueberries, plain yogurt and raspberry sherbet. That's the ticket! Putting ice cream in a smoothie. Today, Holland and Egypt and I made smoothies. They each drank about a cup and then we made popsicles with the rest. We saved them for an after-dinner treat and they all thought it was dessert! Sweet. I even told Holland I'd let him eat a smoothie popsicle for breakfast. Big smile on that one. I'm such a cool mom.

We've all been kinda pouty after Holland's diagnosis because we thought we'd barely (if ever) be able to go out to eat. (Well, I was probably more pouty than super-hero. He's probably thrilled we're not spending money on restaurant food!) Not many restaurants are gluten-free friendly. Red Robin. Nope. Spaghetti Factory. Forget it. But with all my poking around on the internet, I've found lots of bloggers blogging about gluten-free stuff. Recipes. Restaurants. This one blogger mentioned the best pizza she'd ever eaten (gluten-free!) Of course, I kept reading and it was located in Arizona. Bummer. Maybe we could visit there. I think I have relatives in Arizona, right mom? I decided to check out their website anyway. Maybe they had recipes or other links. I scrolled down on their 'locations' page and had to read the word "Oregon" twice. No.... there couldn't really be the "best gluten-free pizza ever" located in Portland?!? And guess what? It's only a few blocks from super hero's office! I'm already planning an afternoon of lunch when Romania has a Friday off. I also decided to check out other pizza joints. There's an awesome pizza place where we had our "Happy Adoption Day" celebration. Holland really liked their pizza. On the left-hand side of their website was a list and the words "gluten-free" popped out. They actually have an entire gluten-free menu coming out. Should be available on October 1st. (Do they take reservations? Because we're going!) The little blurb about the new menu showed how much they know about cooking with wheat and gluten-free flours. They have separate equipment; separate baking areas and are training the employees how to handle the food so there's no cross-contamination. They even hunted down a gluten-free mozzarella. I'm impressed. I don't even care what it costs. We are eating pizza on October 1st.

Saturday, September 20, 2008

It's a Mad, Mad, Mad, Mad World

I feel like such a flake. I haven't posted in about a week! I have too much going on. We finally got the definite diagnosis of celiac disease for Holland. With school, meetings, doctor appointments and Holland's first ceramics class, my life was just too blurry. We also had three straight nights of soccer games and practices, too.

I also took Holland to a language evaluation last week. It's crazy how God lined all these things up. I had to go to school to become an interpreter; then get tendonitis from interpreting; then go back to school and get my degree; then go to graduate school for the deaf education program. While doing my student teaching, I was paired with a teacher in Washington who became a good friend. We've stayed in contact over the years and she referred me to this language expert. It was the most amazing evaluation I've ever been to. All she had to do was listen to his speech, see the way he held his pencil, watch him draw a picture of a fox and a farmer, see that he left out vowels when he wrote to come up with methods for me to use to improve his reading and writing. I went out and bought a digital recorder a few days before so I could tape the meeting. I knew there was going to be so much information and I didn't want to miss anything. I'm so glad I did! I transferred the recording to my computer and have been listening to it and taking notes on things.

She said he has auditory processing issues. He hears perfectly, but his brain doesn't transmit the sound into meaningful information. Phonics mean nothing to him because he can't differentiate between sounds. He has pictures in his head of words that are meaningful to him. That is how he writes; if he has a meaningful context for a word, then he can remember how to write it. But movement actually makes the pictures drop off, so as soon as he tries to write something, he loses that information. It's a crazy thing. I also had concerns of FAS (fetal alcohol spectrum). I sent her an email prior to the appointment just so she'd be aware of my concerns, but not wanting to talk about them in front of Holland. She said based on his ability to recall information and the way he drew details in his pictures (big fluffy tail on the fox; big teeth, pointy ears) that she did not believe that FAS was part of his learning differences.

He also left out vowels in words which she said is a huge indicator in auditory processing disorder. Vowels are not important because the consonants give more meaning to a word. He wrote "frm" for "farm" but he was able to read back what he wrote so she knew he understood the story. She also pointed out that while he was reading, when he came to a word he didn't know, he would insert a word that made sense. So he was making logical predictions about the story. She said this would not be happening with an FAS child. It feels so good to know this because now I have some tools to help him with his perceptual patterns.

The other interesting thing she did was to 'bubble' the words on a sheet of paper with squares set up for a picture dictionary. She would write the word he needed/wanted to know and then create a bubble around the entire word. This is a bit different than what I was doing before. When I was student teaching in Washington, the teacher I was with was a very visual teacher and would 'outline' words for the kids. It would look like you were drawing squares around the letters, but it would all be connected. This really seemed to help some of the kids who, being deaf, are obviously more visual learners. They could see the shape of the word. This method didn't really seem to stick for Holland. The language evaluator told me he needed an even more precise outline of the word. She showed me a sample sentence written entirely in bubble words. The letters were not written, so Holland was just looking at the entire shape of the word. She asked him to read the sentence and he didn't even flinch! It was so amazing. A meaningful pattern was now attached to these words.

The most important thing for me to do now, is to read him a story, have him draw what we read, write sentences to match the pictures and then read back what he wrote. I asked if I should correct his spelling while he was writing. As a teacher trained fairly recently, the rage was to let the kids do "inventive spelling". Let them use their phonics skills to sound out words and write how they believed the word to be spelled. Well, since Holland has no phonics skills, it makes no sense to let him sound out words. She said it takes an average of 40 times to write a word the correct way after learning it incorrectly and know how to spell it. Teach a child the correct spelling the first time so they do not have to "unlearn" it later.

Friday, September 12, 2008

First Day of HIGHday

Thursday was the first day of our homeschooling co-op. We did this last year with Romania and Egypt while Holland was at school. It's three hours of school taught by other moms. You teach or assist two classes and then the third class you get a break and time to socialize with other moms. Romania was a little disappointed because he remembered how much fun it was last year. I reminded him that Holland was unable to participate last year and this was just how life works.

I had asked to be placed in Holland's first two classes: "fun with electricity" and a chess class. I knew Holland would like the electricity class because during the school year last year, he almost electrocuted himself when he put a paper clip into an outlet. It didn't really matter that I had told him not to do that. He simply had to find out himself what it looked like when he did. I guess sparks went flying but now he knows what that looks like and hopefully will not do it again. (When he was a little over a year old, he touched the front of our gas fireplace several times and got blisters from doing this. My helpful sister-in-law pointed out that I just should have told him not to do it. After all, that's what she did with her kids. I've known for a long time that he needs to experience something to learn it.)

The teacher did a great job. The kids all paired up and had a cell (a battery), a small bulb and a ribbon of foil for their experiments. Their first job was to find out how to make the bulb light up. The kids tried all sorts of ways and finally figured out how it worked. She handed out papers with drawings of different ways to get it to light up. The kids had to draw what worked and what didn't work. Then they had to make predictions about several drawings and actually do it to see if it worked. Holland actually got all those right. Chess class was a little more difficult because the teacher did not do a good job of seeing who knew what. I know that several kids (including Holland) had limited experience with playing chess. He assumed that all the kids knew what the pieces were called, how many moves each could make and how many points they were worth. Holland got a little confused, but he partnered with his cousin who knew quite a bit about chess and was able to tell him which moves he could do. I thought chess was a good way to use predicting skills and sequencing.

Overall it was a great first day experience. He socialized so well with his peers - maybe the IEP team should come in and see him and then they can get rid of those dumb behavior goals.

Monday, September 8, 2008

We've Got Books!

We finally were able to go pick up some books. Not all of them were in, but math and history and some writing books came in. We did the first chapter of Early Modern History. There are so many names to remember. He's not going to be able to answer all the comprehension questions and I'll have to work on narration with him. But I'm so glad that he's at least being exposed to all the subjects I chose.

I finished organizing the school room and put away old books from last year. What to do with all those books? The problem is finding a place to store them if I need to look back at them for any reason. My garage is getting smaller and smaller.

We have a busy week. Tomorrow Holland will have his biopsy. We have to be at the hospital at 6.30 am. Then Romania has a soccer game that night. On Thursday we start our homeschooling co-op and I also will have my first meeting with my Educational Specialist. This is where I have to show Holland's work and evidence that I've actually been teaching and not sitting on the couch watching Oprah.

Saturday, September 6, 2008

Good-Bye Molly


Last night I made the decision to put my cat down. She was 16 years old. I got her about a year after we were married. Back in May, the vet said she had some kind of lump and we could do surgery to find out what it was, but I opted for antibiotics and some fluids. She seemed to perk up for awhile and then the end was just cleaning up cat throw-up off the floor. Holland came with me to the vet and we said good-bye. Here's the last picture of her with the kids.

Friday, September 5, 2008

This afternoon was Holland's IEP "transition" meeting. I knew I was in trouble when I heard the woman that was 'supposed' to be on my side comment to the district rep "I read his file last night and my first thought was 'why fix something that's not broken' ". She said this not knowing that I was the one she was representing. I did not know who she was (the person that I thought was going to be there, had lined up this woman in case she couldn't get back from her other committment). I'm glad I didn't introduce myself because this is the only way I would have found out (accurately) that she did not support this placement. This is the person from the charter school that Holland is now enrolled in.

So basically, the entire meeting was me making point after point of why I did not see last year's placement a good fit for this year. How I was going to make that work and how they were going to monitor progress. I wish I had never gotten involved with the school district. I did so, because I believed it was the only way to get the academic help I needed. What I got was an overzealous group of 'professionals' who are more concerned that Holland won't have enough socialization this year. He actually is getting more appropriate socialization than he had last year. Last year he was around kids with some pretty serious emotional problems. This year, he'll be taking a ceramics class, learning about electricity, learning how to play chess and playing soccer. I'd say those were pretty good socialization activities.

Again the money situation was brought up. The district rep's boss was there (never met him before; he's never shown up at any other IEP meetings) and he said it cost $37,000 to educate Holland at Heron Creek last year. Before I could stop it, the comment "I can do it cheaper" came out of my mouth. Such a sharp-tongued comment. But I guess if you're bringing up what something costs, then I should have the same opportunity to comment on that. Big-man boss did not find that funny; but I saw the district guy crack a smile. I asked if a placement at this other charter school would have been cheaper than $37,000 and he said no. I do not believe that one bit. I guarantee they don't spend half that per student at the charter. They only get $5,500 extra per child on an IEP. I bet having an aide out there would have been comprable if not less expensive. They are already servicing 3 students on IEP's - all with academic needs.

The rep even asked if my ultimate goal was to get him at Romania's charter school. I said there was no way I would be plucking him out of his current situation. I spent the whole summer wondering where he would be placed this fall and when I finally decided that the best placement was with me, I would not be making any more adjustments to his schooling right now.

I guess it's good to know before things progress much further who's really going to support me in a pinch. And it's not the woman that showed up today. I did get a very nice compliment from Holland's former program supervisor. She left before the end of last year on maternity, so I didn't see much of her at the end. She said she was proud of the way I handled myself. That it must have been difficult to advocate for my child in a room full of people that weren't in agreement with me. And that I handled it with grace.

Yep. That's my job.

Thursday, September 4, 2008

School is Back in Session

Romania is on day three of school. I took him in on the first day and listened to all the announcements for the yearly activities, their goal as a school community and pleas for parents to volunteer. I stayed two of the three hours because I had Egypt with me (Holland had spent the night at my parent's house) and she was coming to the end of her 3 year-old attention span. His new teacher is nice and there are several kids he knows from his 1st grade class. It's a 2nd/3rd split and so many of the kids had the same teacher last year.

This year will be a lot easier in the driving schedule. Since I am homeschooling Holland again, I don't have to worry about his bus coming and we leave the house a few minutes after 8 to drop Romania at the bus hub. They added another stop this year, so it's a bit closer and I don't have to use so much gas to and from school. Yesterday, Holland and I finished his school work before noon and he was able to play with a neighbor boy for a couple hours in the afternoon. So far he's doing pretty good. I still don't have all of my school books I ordered over 6 weeks ago. They are still sorting them at the school and their method of inventory only allows one person on the computer at a time. So we are finishing up the last few pages of his math, and doing some reading and handwriting stuff I had left over. I've even been pretty successful keeping Egypt busy with coloring, building blocks and painting. Holland seems less stressed out, so I'm praying this year will look a lot different than it did two years ago.

Monday, September 1, 2008

Labor Day Weekend at the Lake

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We had a great weekend at the Lake cabin. Romania did most of the swim activities and Holland did almost all the boat races he qualified for. Egypt entered one race and when I popped her in the water for her swim, she cried, turned around and I picked her up out of the water. She still got a ribbon, though.

I was very impressed with how well Holland did in the boat races. Last year he got so frustrated and pretty much gave up the first race and then back out of the rest. This year, he did the rowboat (he said was his favorite), the kayak, the two boy canoe race with his brother, the boy/girl canoe race and the parent/child canoe race.

Romania did all the swim stuff he qualified for. He won his swim race and did the diving competition and the slide as well.

We had terrible weather :-) It was so cold for being the end of August. And on the night of the all-lake BBQ, it poured! They had a little awards ceremony and it was sprinkling. We started dinner at 4.45 because we were all worried about getting soaked. By 5.45 it was raining so hard it looked like November! The kids had a great time, but were so tired by the end of it all. Monday is a do-nothing, get-ready-for-the-first-day-of-school day.

Friday, August 29, 2008

A Picture's Worth a Thousand Words

I got a phone call yesterday from a place that I've been trying to have evaluate Holland since June. They are so popular that it takes months to get in. They evaluate language processing skills and help find the ways your child best learns. The kids were all quiet until the phone rang. They're like a heat-seeking missile. As soon as I got on the phone, the dam broke. If it was my sister, it would have been easy to hang up and deal with the beasts. But this was the woman trying to schedule an appointment. I interrupted my conversation 3 times to get them to stop fighting. At one point, I hid in my room (no lock, so I had to keep my foot on the door while my 3 1/2 year old cried at the door).

The woman asks me if the one having the problem is the one that will be evaluated. Oh how embarrassing. Nope. That's my middle and youngest going at it. She was very nice saying she understood what it was like. She made an interesting couple of comments. She said that I needed to draw with him. That he could not see himself in the situation. I can completely understand this, because that is exactly what he looks like. He gets "stuck" in the moment and cannot go forward or backward. I actually used to do this with my students I taught many years ago. The woman that referred me to these people was actually the teacher I student taught under. She's the one that got me started with drawing. I used it all three and a half years of my teaching, but didn't continue it once I became a mom. I kind of laughed in my head when she said I needed to draw with him. Can you just see it? "OK. Let me put you on hold while I draw for my 7 year-old the reason he shouldn't be yelling at his sister about those dominos."

I decided to give it a go for post-behavior reinforcement. I sat down with all three of them and began drawing what I was doing and what they were doing. I didn't even tell them what it was. But Romania said, "That's you on the phone and me yelling at Egypt!" Great. Now we're on the same page. I went over what everyone looked like. How Holland hid out in the other room. How Egypt and Romania kept screaming at each other. Then I crossed it all out and drew two options that Romania had. I asked him which he thought would be easier for him and he picked the "walk away and wait for mom" instead of the "sit there and let her touch my dominos".

The true test came this morning however, when I was getting ready to head to Costco with three "I can't walk in a straight line" kids. I thought why not try this before we leave? I drew me pushing the cart into Costco, with Egypt sitting in the cart and the two boys walking behind me. Then I drew several pictures of what not to do and crossed them out. Then walking through Costco, the boys pretty much stayed behind me and Egypt *gasp* did not ask ONCE to be taken out of the cart. This is a girl who has driven me out of Target because she wouldn't sit down.

After lunch I had to run a couple more errands because we'll be gone this weekend. I'm trying hard to focus on correcting behavior. I have a couple charts; the "IF-THEN" checklist and "The Blessing Chart". They've been great tools, but I wanted to add "The Brother Offended" chart, too. There's a great homeschooling bookstore very close to me and I wanted to go in quick to look around. I didn't get to stay very long because I forgot to draw a picture before we left. I'm not kidding. It was the complete opposite of Costco. Two of them were arguing over toys; then one started driving the little car around the aisles. Someone pushed, someone cried and I had to leave.

I thought maybe Costco was a fluke and they just happened to behave. But after seeing their behavior in the bookstore, I'm going to buy a couple of sketch pads. I'll leave them conveniently around the house and my van for future counter attacks.

Wednesday, August 27, 2008

We've Been Bumped

I cannot keep track of all the appointments we have going on. Yesterday morning, only one day after scheduling Holland's biopsy, I got a call from the doctor's office saying he had to reschedule because he'd be out of town. I have this sneaking suspicion that he's taking an extended Labor Day holiday, but who knows. The good news is, now I can go to Romania's first day of school. The bad news is I have to feed Holland wheat for another week and a half and witness major meltdowns. It's been incredible to see the change once I reintroduced wheat. He gets upset at the most minor things. He looks to be in a fog and his face looks so tired.

The other thing that has happened is the IEP team for Holland has decided that they need to have a transition meeting to talk about me pulling him out of his program. Nobody seemed to care when I was pushing for placement at the Charter school, but now that I've pulled him out of public school (gasp!) everybody has something to say. It was scheduled this week, but the district rep said that his boss couldn't make it so they had to reschedule. (BTW - this boss has never been to any of the other placement meetings when I was requesting the move to the Charter school.) So he rescheduled for next week, but that was the week of Holland's biopsy. So I called to reschedule because I didn't know how he'd feel the next day. I get a call this morning saying they can do it on Friday next week, but they are trying to coordinate 7 people. I told the district rep the only person who needs to be there is my Educational Specialist. She's the one helping with the transition. I haven't heard back if the meeting is in fact on the 5th, but I cannot imagine going into this meeting with 7 people having strong opinions about my decision to pull him. They've even invited the principal from the Charter school. Why?? She is no longer involved in this. They don't want him, why do they need to have her there?

To top off all the chaos and confusion, I have yet to receive even one of the books I ordered for Holland's school year. I know that they are in fact in the school office, but there is one person entering in all the books received and was told on Monday that I may not even have the books by the start of the school year. "What am I supposed to do? I have no books!" The secretary told me to "be creative." I'm wondering if this is worth the hassle.

Monday, August 25, 2008

We've Scheduled a Biopsy

Surprised? We were, too. Apparently my pediatrician's office jumped the gun on going gluten-free. The gastroenterologist called me on Saturday and said because of the blood test results, Holland would need a biopsy to diagnose celiac 100%. I guess you can't ask too many questions. I'm pretty thorough when it comes to finding things out. But I've been led on this wild goose chase. I thought that the blood test would be the end of the celiac question.

We're scheduled for a biopsy on September 2nd. Bummer. I have to miss Romania's first day of school. And we have to be at the hospital at the unruly hour of 6.30! Hopefully there are no other procedures that need to be done before we find the answer to this riddle.

Sunday, August 24, 2008

Nebraska Law Goes Too Far

I read an article in my local paper a few days ago and was shocked at what a new law in Nebraska allows: the abandonment of children. Many states are implementing a way for mothers of newborns to not be prosecuted for abandoning their month-old babies. They can drop off a baby (usually younger than 30 days), no I.D. required, no questions asked, at a hospital or fire station. But this law was set up because a growing number of mothers were leaving their babies for dead. I guess states felt it was better to give an "out" so the baby wouldn't end up dead.

Well, this law far exceeds any common sense. Some lawmakers wanted to extend protection to "all minors". So, if you have an unruly teen, a disabled child or are just plain frustrated with parenting your three year-old, go to Nebraska and you can dump your child in the arms of the state, no questions asked. The kicker is, even if you're not the parent, you can do this. If the child is in the care of a babysitter or another caregiver, they too, can reap the benefits of this ludicrous "safe haven" law. Here's the entire article.

Thursday, August 21, 2008

Day Three of No Wheat

Holland's been eating gluten-free for about three days now. I thought I was imagining a positive behavior change, but my mom was over and noticed the same thing. The best way to describe it is he's more carefree. He's actually cracking jokes and laughing. We played a game of Uno last night and he kept snickering every time he'd give me a "Draw Two" card or a "Skip". Lately he's not even been interested in playing games with us. It was so great to see him in such a good mood. He's also been pretty easy to please with the food changes. My mom found this great gluten-free chicken strips and he said they tasted just like Red Robin's! We're still working on the gluten-free oatmeal.

Tuesday, August 19, 2008

I'm Ready!



Last night when I went in to check on the kids, you know to make sure no one was hanging off the bed, or stuck in a weird position, I found this little treat in Egypt's room. I took this picture in total darkness. Last year when Romania started going to the charter school, I had to get all three kids ready to actually leave the house by 8.30. And anyone who homeschools knows that actually leaving the house is much different than just "being ready" for school at home. So we got into the habit of hanging up everyone's clothes for the next day. Here is what Egypt hung up, on her own, and the skirt was pulled out of the laundry basket. I guess I didn't wash it quick enough for her. But I just thought it was so funny how she even included underwear!

Monday, August 18, 2008

New Recipes


So, I am now going to become an expert in yet another area. First, I became an expert in dealing with a child with bipolar. Then, God allowed me to become an expert in Spina Bifida, learning disasbilities and Juvenile Rheumatoid Arthritis. But wait! He's not done! I'm now going to become an expert in.... drumroll......
cooking without gluten!! Yes, it's true. Holland has been diagnosed with celiac disease. I've actually tried a gluten-free diet before with him, but I don't think I was as dedicated as I will have to be now. It's not going to be an easy thing. If you've ever looked at the ingredients in foods, you know that gluten is in everything. Not only can he not eat wheat, he can't eat oats, rye, or malt. (oh, so sad, no chocolate!)
So here's my first attempt at gluten-free sugar cookies after the celiac diagnosis. I'll let you know tomorrow if Holland eats them (let's also hope that the other two like them also!)

Saturday, August 16, 2008

Egypt's Eye Check: Check!

On Friday Egypt had her 3-month eye check up. We have to monitor her eyes for uveitis, an eye infection related to JRA. Clean bill of health! The most exciting part? Getting princess stickers when she was done.

Thursday, August 14, 2008

CAT scan is done

We've just finished two days of testing on Holland: blood work, CAT scan and poking in areas that don't deserve to be poked. Our pediatrician recommended having the CAT and seeing a gastroenterologist. He didn't seem to think the fluid in his abdomen was any big deal, but the CAT scan showed so much blockage in his colon. He said kids with tethered cord often have constipation problems. He's had this before. We cleaned him out with magnesium citrate and did Miralax and it seemed he was too "loose" so I stopped. I guess I won't be able to do that again.

Another possibility is celiac disease. I've done a gluten-free diet with him before, but it was so hard to keep. It's nearly impossible to avoid and the foods you can make with different kinds of flours don't taste that great. We stopped at the lab for blood work after his appointment and hope to get some results by Monday. He had to be poked twice because his vein collapsed while she had the needle in. His arms and legs are so cold (they get that 'mottled' look) and his skin is cold to the touch. We had to warm him up before she could get enough blood.

Monday, August 11, 2008

More Tests

I finally was able to talk to our pediatrician's nurse today about Holland's ultrasound last week. We had been gone all week and I kept playing phone tag with her. We have been advised to do an abdominal CAT scan and he also needs to see a pediatric gastroenterologist. I'm so thankful that both of these appointments will happen quickly. The CAT scan will happen on Wednesday and the GI doctor actually had an opening on Thursday. The ultrasound showed no sign of a hernia, but the radiologist found "abnormal fluid" in his abdomen and so we are on to more tests. The pediatrician can only guess what that fluid means: an infection or something ruptured. Neither result sounds good. Hopefully I'll know more on Friday and can post results then.

Sunday, August 10, 2008

We're Home!

We spent this last week at my in-law's cabin. It's on a beautiful lake with plenty of room for fishing, boating and just laying in the hammock, reading (which is where I spent a lot of time!). The kids had a great time. Egypt and Romania love the water for swimming, but Holland would rather fish it. Or hunt for crawdads. Or try to catch sturgeon. Sounds crazy to have sturgeon in a lake, but about 80 years ago, the lake had a saw mill on the property (before cabins were built). There was a Chinese cook who fished on the Columbia River and would catch sturgeon to use in his restaurant and for the mill workers. He rigged a big cage and would keep the sturgeon in it and just pull it up whenever he wanted to cook. One morning he went down to find the cage broken and all the sturgeon gone. One was caught back in 1935 and there's a picture of it in some historical book. The thing was about 7 feet long! Then about 10 years ago, someone across the lake caught one and super-hero dad had brains enough to grab his camera and take a boat over there. He snapped a picture just as the line broke and an 8-foot long sturgeon got away! I think that's why Holland would rather not swim in water where he cannot see what's around him. It's estimated that there are at least 3 giant sturgeon still in the lake.

I have lots of pictures to download and put in a slideshow. Romania got up enough nerve to go down the big slide at the swim dock. And why not? He already jumps off the boathouse roof!

Tuesday, August 5, 2008

Good News!

It's not a hernia! Yea! I took Holland in this morning at 7.45 and he had an ultrasound around 8. The tech said he did not see anything that looked like a hernia. I think we're just dealing with constipation again. We're on our way back to the pedi to find out about his blood work from last week. And to also talk about this weird rash he had yesterday while we were at the cabin. It might be viral, so there's nothing we can do. His legs and arms were covered with this purple spider web-like rash. We're just praising God that it isn't a hernia.

Friday, August 1, 2008

Here We Go Again (isn't that a dolly parton song?)

It's been a few days since I've posted and a lot has happened since then. Why does it always seem that life happens so fast and you have no time to breathe? Holland has been complaining of a stomach ache for about a week. His weight has dropped a lot - he's lost almost 7 pounds since April. We had an appointment with the psychiatrist on Wednesday to check in with meds and how things are going. He knew about the weight loss beforehand and we talked about switching one of the meds to a pill instead of a capsule. He thought that might be causing an upset stomach, plus constipation, and would lead to a decreased appetite.

That night, Holland was again complaining of a stomach ache. So I had him lay down and felt his tummy so he could show me where it hurt. When I moved over his left side (below the belly button), I could feel a lump. I kept feeling on the right side to make sure I wasn't imagining it. I called first thing in the morning to our pedi and got in 30 minutes later. The doctor felt around and he said he thought it was a hernia. We were already having blood work done for the psychiatrist so our pedi just added a few more tests and a urine sample. We leave for vacation on Sunday but will have to come back in town Monday night for an 8 a.m. appointment at the hospital for an ultrasound.

He is in so much pain. On taco night, he barely ate one little taco and was full. Then last night I made spaghetti and meatballs. He ate one meatball and some corn and couldn't finish the noodles. I'm praying that the new Lithium pill will ease his stomach aches. We also have to start up with the Miralax again to keep the constipation down. It's disappointing that the capsule could be the problem because that cost me about $12 a month. Now I am paying $50 for one month's worth of Lithium.

Monday, July 28, 2008

Education Specialist

Today the kids and I went to a nearby park to meet Holland's Educational Specialist for this coming year. All the kids played and we were able to sit and talk about what she's legally required to do and what I will be asked to provide. Not only do we meet once a week for an hour, but I have to turn in 6 different pieces of work that shows Holland's been working on the required subjects. I've been blessed with a great ES because I used to teach with her at a Deaf School before I left for another position at a different school. She knows me, my situation with Holland's current school placement and is willing to make it work for us. She will take these work samples and write comments on her observations (it's not an evaluation, just a means of documenting compliance).

It all seems so weird right now. Each new year brings an entirely new way for me to school. I sure hope we can get past the experimental stage quick. I've gone through countless curriculums to make it work; he's been in a very strict public school program and now I'm returning to homeschooling with additional support. We'll see how much stress all this documenting weighs me down.

Saturday, July 26, 2008

It's Elementary My Dear Watson!

Super Hero dad took the boys to a water park this afternoon. We had free passes from our library's summer reading program. I didn't want to take Egypt - it meant me in the water. So I called up my sister and asked if we could come over for a quick swim (her boys and DH were at a father/son camp for three days). Egypt wanted to know who was going to be at her aunt's house. I said that her uncle and the two boys weren't there. She just repeated this and said "oh." Then we pulled up to their house and she saw two cars and said "who drove him?" How in the world did she make that connection? It didn't make sense that his car was in the driveway, but he wasn't. Amazing mind of a 3 1/2 year old!

Friday, July 25, 2008

Ewww. Gross.

No two ways about this. Tonight I was getting ready for my monthly game of Bunco with my girlfriends. I had to make dinner, keep the kids from killing each other and I was washing clothes. I have a new pair of capri jeans that I wanted to wear. I went up to the washing machine and opened the lid. There was this white fluffy junk all over the clothes and stuck to the sides of the machine. One of the boys had left a pullup in his pajamas and put it in the laundry room. I can usually tell when there are pullups left in pajamas because I can feel the added weight :-) But this one happened to be dry. That is until I washed it. Now I know what the inside of a used pullup looks like. So I didn't get to wear my cute new capris. I had to shake off all the fluff, and vacuum out the washing machine and then rewash the clothes.

Thursday, July 24, 2008

School Decision

I think we finally know what we're doing this fall for school for Holland. I was really wanting him at the same Charter school as his brother, but the rep and the principal are so against it, I feel I would not get the support I needed if I push the matter.

Right after school let out, my sister and I took a tour of the newest charter school in our area. It combines homeschooling into a public school setting. It's quite unique. You are assigned an Educational Specialist who works one on one with you to develop your yearly plan and they check in weekly. We put our kids on the wait list, not knowing what we wanted to do, but to have that option should openings occur. We were so far down the list that I was not considering that an option. I got a call yesterday that both the boys got in (I put Romania in there just to be able to change my mind about the other Charter school). I filled out the paperwork and they will request records, his IEP, and any other documents they need to transfer his placement to the new Charter school. I will get $575 to spend for the entire year. This can go towards curriculum, classes at the Charter school, extracurricular activities or lessons. The only catch is it can't be faith-based. So some of the curriculum I used before I won't be able to buy with this money. I can still use it, I just can't include it in my school schedule.

It will be interesting how this works out. I feel better about him not being at the same program he was at last year and hopefully I will be able to make some progress.

At this point, his placement from last year would just not work. Behaviorally he's improved so much that it makes no sense to put him back where he was. Springwater will not approve of the placement, so my only other option was to homeschool again. I see no reason to leave him in a classroom full of kids with potentially severe behavior issues.

Tuesday, July 22, 2008

Frogger

I haven't had anything funny, exciting or enlightening to share the past couple of days. So I thought I'd bore you with our hunt for Frogger. No, not the video game. A real frog.

Two days ago we were cleaning off the front porch and I happened upon a cute little frog. Holland and I caught it and put it in the little plastic fish tank we had. It has a hinged lid and some air holes. We wanted Romania to be able to see it before we let it go. He was spending time with gramma and got back today. Well, at dinnertime, Holland looks over on the counter and says, "Where's the frog?" We all look at the counter and then look at Egypt. She's sitting there so quietly, so coyly. I send Romania upstairs to find the tank. He runs to the stairs and shouts, "the frog is not in the tank!" We all run upstairs and just start tearing her room apart.

No frog. She actually built a little home for it. And if this was more humorous to me, I would have taken a picture. But I couldn't see the humor in a frog roaming around my house. We will probably find it in a couple of years, shriveled up. Poor froggy.

Sunday, July 13, 2008

Here Comes the Sun


It's been hot here the past few days. Don't feel like doing much outside. But while doing laundry, I had hung a few things on the chairs on the deck because I wasn't sure if the stains I treated had come out. I could not believe how fast everything dried. I've dried clothes outside before on a rack, but the wood always get gross and looks moldy, so I don't want to ruin the clothes.


You might remember we have a zip line from our deck to a tree at the bottom of the hill. I've thought about hanging stuff on it before, but felt weird that my neighbors could see our laundry. My sister convinced me that it didn't matter, so I have a bunch of stuff hanging up. Egypt helped me with the clothespins and handing me clothes. It's so nice to do something that's FREE!

Thursday, July 10, 2008

The Duck

Tonight we met Super-Hero dad at a kid-friendly restaurant. We had a birthday coupon that expired today and wanted to make sure we used it. There was a giant bird wandering around the restaurant (figure out where we went, yet?) and when I took Egypt to the bathroom, we ran into this creature. She was curious and gave him a high five. Then she turned to me and said "That's a big red duck!" I tried to explain that it wasn't a duck, but Red Robin. Heard lots of chuckles from patrons at nearby tables. She argued the whole night that it was a big duck.

Tuesday, July 8, 2008

Oops

The kids have been taking swim lessons last week and this week. The boys are in the same class and Egypt had just one other boy in her class last week. This week, she's all by herself, so it's like a private lesson without payin' the big bucks! It takes about 30 minutes to drive up there, so it's a big production to get everyone ready, snacks packed and dry clothes to change into.

Today after the lesson, I had to hurry everyone back to Holland's therapy appointment. It takes closer to 40 minutes to get back to where we need to be and I was frustrated because the boys took so long to get ready. It was like waiting for a teenager to finish showering. They were in the boys locker room for about 20 minutes. At least they're clean, right? So, hurry, hurry, everyone dash to the car, get your snacks and seatbelts on. I barely make it to her office in time and when she comes out, she says, "Oops. Looks like I scheduled two families at the same time. You guys flip a coin and figure out who gets to stay." Sheesh. Just what I want to do. Argue my case to a total stranger of why it's a lousy idea for me to come back, or even reschedule. Luckily, she was willing to take her girls to a nearby park and play for the hour and come back. I would have just given up had she not offered to do that. God knew that I couldn't handle any more on my "to do" list today.

Sunday, July 6, 2008

Independence Day

Click to play 4th of July
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We drove up Friday and Saturday to the lake cabin. We opted out of spending the night (too many people - not enough beds) and just drove the hour each way. The kids had a blast with the junior activities (boat parade on the 4th, carnival games, popcorn and movie and the ever-popular crawdad races!) Holland and Egypt had crawdads win their first races and then raced each other, but we lost. They put 3 crawdads under a big plastic cake lid and then the crawdads race to the edge of the circle. It's really funny. Kids catch crawdads with hotdog pieces and name them for the race. I didn't get any pictures this year. It's really hard to see what's going on because there are so many people crowding around the circle. It's a tradition that has been going on for 7 years now. Holland won one year and we got to keep this plaque with a plastic crawdad on it in our cabin for the whole year.

Sunday, June 29, 2008

A Day at the Beach

The forecast was for 100 degrees. I don't do 100 degrees. We decided to surprise the kids and head to the beach for the day. We had most everything packed the night before, so they wouldn't know what was going on. It didn't take them long to figure it out.

I packed a ton of food for snacks and lunch on the beach. We headed to one of my favorite beaches on the Oregon coast, Cannon Beach. It's becoming more popular, so it's hard to get parking and finding a spot on the beach without a lot of people right at your feet is also getting more difficult. But it's so pretty there. There is Haystack Rock with tidepools, perfect wind for flying a kite and no bugs in the sand! Take a look at the slideshow for some great pictures of our day at the beach. We also bought taffy at Bruce's Candy Kitchen - THE only place to buy taffy. You can watch them make it right in the front window.
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Friday, June 27, 2008

Sports Camp Week

This past week the boys spent 3 hours every morning attending a sports camp that our church sponsored. Romania had participated last year, but Holland missed out because of summer school. I really wanted him to be able to do all the fun summer stuff, so we opted out of summer school. He had such a good time! They did a different sport each day, learning the rules and basics of 4 sports. Friday was spent cooling off with a water day.

During the week, the kids worked on memorizing two verses. They would earn a special pin if they could say the verse to a "coach" at the end of the week. Romania had no problem memorizing it. He worked by himself, jumping on the trampoline while he said it. I had worked off and on with Holland during the week but hadn't really sat down and listened to his recitation. Last night, I spent 40 minutes with him while he worked so hard to memorize it. I actually didn't think he would be able to say the whole thing. He kept switching words around, leaving big chunks out. His brain just doesn't hold on to information. I tried doing hand motions with him, but he got irritated and said it distracted him. I tried feeding him one word to get him going. If he made one mistake, he would start all over again. I wanted him to get the flow of saying the whole thing. After 40 minutes, we stopped and said we'd try again in the morning. I felt so bad. He can see that Romania has no problem memorizing. But I have to say, that I am so proud of Romania because he is Holland's biggest cheer-leader. He has never once made his brother feel bad for not doing something that comes easily for him. He cheers Holland on, gives him pats on the back and tells him what a great job he did. If we didn't have that, the tension around here would be horrible.

So this morning, I had the boys recite what they could. Holland was actually able to say most of it before breakfast and just had a few little missteps. Then on the way to sports camp, he said the entire thing with only one word prompt! We all cheered and he had the biggest smile on his face!

He got his pin.

Thursday, June 26, 2008

Happy Adoption Day!


Nine years ago, we went into a courtroom, stood in front of a judge, and were declared the legal guardians of Holland. Every year, we celebrate this anniversary. We've usually done big family activities, but this year we had a low-key outing at a pizza joint. We talk about how special each child is and how important he or she is to the family. This is another way to recognize the uniqueness of our family and how God joined us together.

Tuesday, June 24, 2008

Come on. The other knee?

We just went in to see our rheumatologist a week or so ago. He checked out her right knee and said everything looked good. Checked other joints and didn't seem to be any problem. Now, the last three mornings when she's woken up, she's complained of her knee hurting. I ask her which one and where and it's the left knee. I really hope this hasn't spread to the other knee. I'm waiting for a call back from the doctor to see if we wait it out for the three month check or come in now.

Thursday, June 19, 2008

Follow-Up on Injection

Today I took all three kids up to the hospital where Egypt had her injection 3 weeks ago. Doctor likes to check on progress, range of motion and to see if other joints have become affected. He says she's moving well. She's very active, so he didn't recommend physical therapy. I told him that she has recently had two different viruses and asked if I should be concerned. I thought maybe this meant her immune system was weak and she would be susceptible to more infections. He said no, that she just was one of those kids who picks up everything.

I also asked about her knee still looking swollen. I thought the initial swelling took longer than a week. He said the inflammation from the arthritis has caused her bones to grow quicker. She has a bigger bone mass on her right knee than her left knee. This also means that the bone is lengthening faster and her right leg is a bit longer. He showed me by laying her on her tummy and extending both legs out. Sure enough, I could see the length difference. You could also see it when he bent her knees up and the right knee extended farther than the left. Hopefully when (if) the arthritis goes away, it will correct itself.

Just glad that things are pretty normal (I'm not even sure what that looks like anymore. Normal for us is doctor appointments every week).

Wednesday, June 18, 2008

Show Me The Money!!

I hate that movie, but the title is appropriate. I had a conversation with the District Rep for Holland's IEP on Monday. What it comes down to is money. The school he is at now doesn't want to give up a full-time slot because they wouldn't get the funding. The Charter school doesn't want a part-time student in a slot that they could get full funding for (which is only 80% of public school funds). So there you have it. Everybody wants the money. Maybe nobody should get it.

I also brought up the academic part of his IEP and said I didn't think that his current school was meeting his goals (or his learning style for that matter). He actually was surprised at this. Well, that's because you have this tiny little box that you've stuck your head in and think "this is what education looks like". And when a child doesn't succeed, you assume it's him and not you. Everything is behavior driven. So, forget that he needs motor activities to help him pattern and make sense of things. He's bored. He's not interested in the endless worksheets that don't connect him to the learning. It's all his fault because he can't learn how you're teaching him. He needs someone who can teach him to see how he thinks. If he takes in information differently, then it makes sense that it's the teaching that needs to change.

Why is everyone afraid of taking a chance on this? I'm so sick of hearing that his social and behavior needs are more important than his academic needs. If he's invested in something, if he's interested in something, then the behavior will follow. When does a kid act out when they're enjoying something?

Tuesday, June 17, 2008

Good Clean Jokes

Today was Romania's last day as a 1st grader. His teacher gave each student a pouch for Field Study days with a sketch pad, colored pencils and a magnifying glass. He also printed out all of the 'joke of the day' he did throughout the year. Here are a few of my favs:

What did the baby corn say to his mom?

Where is pop corn?


Why did the banana go to the doctor?

It wasn't peeling well.


What do sea monsters eat?

Fish and ships.

How could a cowbody ride into town on Wednesday, stay two days and ride out on Wednesday?

His horse is named Wednesday.

Saturday, June 14, 2008

Tomatoes-Tomahtoes

We have been working so hard on our yard. Super hero dad loves to work in the yard and has so many projects lined up. He finally finished our fence. It covers the entire backyard and there are gates on either side of the house. This is so exciting because now I can leave Egypt to play in the back and not worry that she will go into the front yard. Kids in - deer (and dogs!) out.

Today Romania and Egypt and I went over to my uncle's house to borrow his rototiller. I ran into him yesterday when I went to my mom's to feed her cat. (My sister and I have vowed not to kill the cat. Last time they went on a trip, we barely remembered to feed the cat and wondered how the thing managed to survive). So when Egypt and I got there, my uncle was mowing the strip of grass down their gravel road. I said something about wanting to til an area in my yard to plant vegetables and he said he had one. Great! After all the craziness died down today, super hero dad was able to finish the last part of the gate and install it. He even tilled the vegetable area and offered to put the boys to bed so I could plant my tomatoes. Then I stayed outside extra long so I could water all my plants and just listen to the silence. The kids are extra excited (not about the tomatoes) but about the three ginormous blueberry bushes we have. Last year we picked probably 10 to 12 cups and we have that and maybe a quart more. My favorite thing is to watch them just eat them off the bush.

Tuesday, June 10, 2008

The 12 Lives of Miss Molly

I felt I needed to post an update on our cat Molly. She has bounced back yet again, defying the odds of a cat who is 16 and possibly has cancer. I've been giving her amoxicillan and an anti-nausea medicine twice a day. The couple times I forgot, she threw up on my floor, so apparently it's working. She is eating all the time, so I'm hoping she'll gain some weight here and weigh more than my sister's Yorkie.

Saturday, June 7, 2008

Day of Fishing

Today we went out to a park near Estacada for a day of free fishing. Parks all over the state offered free day use and some even had free fishing clinics for the kids. They had park rangers to help with setting up poles and free bait. They even had poles you could borrow.

The little pond was cute, but very muddy. I had a hard time getting down this steep embankment that had been travelled so much it was basically a big mudslide. We got down to the bank and got the poles baited and tried to cast, but it was so crowded, we spent a lot of the time pulling hooks out of tree branches and untangling lines with our neighbors. The kids had a good time. They even got hot dogs, chips and pop for their efforts.

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We ended up moving to the other side of the pond and fished near my sister and her kids. Holland even won a raffle prize - a book flashlight. We all ended up pretty muddy but the kids didn't seem to mind that they didn't catch anything. Oh well. Maybe we'll head out again on a less drizzly day and try again.

Thursday, June 5, 2008

Writing Breakthrough

I wish my scanner worked. Then I could show off what Holland did tonight. After talking with my friend in special education, I took her suggestion of reading to the boys. Living books is the way to go. I think I'm going to use the Charlotte Mason philosphy. Holland had a huge success tonight.

We started reading "The Tale of Despereaux". While I was reading, I had both boys just start to draw what they were listening to. Whatever picture came to mind. After about 5 chapters, I stopped reading and asked them to describe their drawings. Holland had a great picture that included several ideas on one page. He even had word bubbles for two characters with something funny they said. Then I asked him to write just one sentence to describe his drawing. He asked how to spell the mouse's name and I showed him the book. He completed the first sentence without even asking for more help. I said he did a great job and said I would start the next chapter. He said he had another sentence he wanted to write. So I sat back as he and his brother each wrote 5 sentences on the back of the drawings. I have never seen him so excited about something he did. He had the biggest grin on his face. I told him we would be doing this all summer and he yelled "yea!"

I feel even more confident now in making the decision to school him at home. If he's not going to be able to attend the charter school and get the kinesthetic learning I feel he needs, then he will blossom at home.

IEP placement meeting

If I would have written about Holland's IEP placement meeting right after I got home, it would have looked something like this:

The district rep and the principal both felt that a placement at the Charter School was not a good fit. The district rep is worried about Holland's behavioral issues; the principal is concerned they won't be able to meet his academic needs. I brought up Holland's current school behavior, how he's not the one throwing chairs, running out of the room or needing physical restraint; he's the only student in his class that qualifies for the summer program based on academics and not on behavior. They are worried about withdrawl when he is frustrated with the academics (his withdrawl looks like him putting his head down on the desk and not working. What kid NOT on an IEP hasn't done that?). The principal said that the teacher would most likely not be able to adopt a whole new curriculum for just one student.

I basically get no support from his current school. If I decide to pursue placement at the Charter School, they will not help me. The district rep wants to keep him at his current program. I do not want him around kids with that kind of behavior. I do not want him doing busy-work. I don't want him doing a sight-based reading program that takes every word out of context. The placement I want, they don't want; the placement they want, I don't want. It was suggested that he could do a transitional program in the mornings and then go to the charter school in the afternoons for the hands-on activities. But after considering this, I felt the settings would be so different that he wouldn't be able to adjust to such opposite expectations.

This afternoon, I emailed a former co-worker about my situation. When I taught at a deaf school, she was the special education teacher there. When her kids were born, she quit teaching and now homeschools her two children. She started up a program that links homeschooling families with the local science museum. She also helped write a charter for a school in our city that pairs the idea of homeschooling within a structured school setting. I asked her what she thought I should do. She thought with Holland's special needs that he was in a program that wasn't addressing his current learning abilities and also wasn't recognizing his need to build and create. The whole reason I want him at the charter school is for the hands-on approach; the whole body learning experience. What she made me realize, is that once again, I'm the one who can provide what he needs. Now that his mood is regulated, we can focus on the learning part. I'm hoping to supplement homeschooling with classes at the homeschooling charter school. If we got in full-time, it would mean being able to meet with an educational support person weekly to monitor progress and help with the academics.

I know that his current program is not going to like me pulling him out of there. They think he needs the socialization (what public school doesn't frown upon the 'socialization' needs of a homeschooled child?) and that he would get more benefit out of a transitional program. I do not feel that way. I want him in a place that he will be able to move about, and explore and experience nature and science. So for now, I will keep Romania at the environmental science charter school, homeschool Holland and use the homeschooling charter school as a supplement program.

This next school year looks nothing like what I pictured last year. I will again have two kids in two different locations, getting out at two different times. Oh, the craziness of education.

Tuesday, June 3, 2008

My Nice Quiet Afternoon

Ha ha ha ha! I am laughing just reading my own title. When does a mother ever have a nice quiet afternoon? After getting Holland on his bus and taking Romania to his school, Egypt and I ran some errands. I needed to get a portable CD player for a new audio program we are trying out through Holland's OT. I also stopped at Toys R Us to look for a stroller that can carry a child weighing more than 40 pounds. I've been thinking I will need to have a larger stroller on hand when Egypt's arthritis flairs up again and she can't walk. Then I stopped at the bank.

Egypt and I came home, colored, read and ate some lunch. She then set up her pillow and blankets on the couch downstairs and decided to nap. I've let her do this before, but she never sleeps. Today she actually slept. So it was no surprise with a quiet house and a sleeping child, that the phone should ring and someone from Romania's school would tell me that he was throwing up and having diarrhea. Holland would get out of school in 30 minutes so I had to call them and tell them not to put him on the bus. Then I had to wake up Egypt and pack her in the van, drive to pick up Holland and then drive over to Romania's school. His face was ashen white and he was sitting in front of the boy's bathroom with a garbage can in front of him in case he needed to throw up again. Poor guy. It took him all of 5 minutes to fall asleep in the car.

He woke up when we got home and asked if he could play. I told him he needed to rest and once on his bed, all snuggled with blankets and "The Cricket in Times Square" audiobook, he fell asleep again.

What was I going to do today?