Wednesday, May 7, 2008

Not the diagnosis I wanted

Took Egypt to the pediatric rheumatologist today. She does have JRA (juvenile rheumatoid arthritis). So far it's just in her knee, but it could flare up in other joints. He checked everything, even how her jaw moved. Since it's been longer than 4 weeks since I noticed it, he said it's past the point of resolving on its own. If it was a result of the virus she had, it would have gone away.

There's more bad news: she has to have injections while sedated every three to six months. They inject right into the joint, so they have to sedate. And it gets worse: she also has to see an opthamologist because apparently there is an eye disease that goes along with JRA and she is high risk (for several reasons) to develop it. She could ultimately lose her sight if we don't monitor it. There are no symptoms.

I felt numb driving home from the hospital. I couldn't believe I am facing another major illness with my kids.

1 comment:

Laura and the family said...

OH, I am so sorry to hear. You have my prayers. I certainly hope she does not lose her sight. She knows she has your love, that counts.