I took Egypt to her Shriners appointment last week. Super Hero had the day off (I really need to find another way to say that. He was home, unpaid....). So he stayed home with Holland while I drove up to OHSU. I've been up there so many times, you'd think it would be no big deal. Have you SEEN this place? It's huge. It should have its own zip code. I had directions for where to turn into the parking structure. They are actually not part of OHSU and if you park on their property, big trouble. I missed the parking garage the first time. It didn't even look like it was somewhere you could turn. The garage itself was something to behold. My van isn't long and obnoxious, but I could barely make the turns and there were cars parked alongside the ramp the way up.
But we were on time and filled out some more paperwork and waited with our beeper to be called. Everyone was so nice and after being seen by the pediatric rheumatologist, physical therapist and occupational therapist, they said anytime we need any services to just call! They didn't think she needed another injection at this point and to just watch for any stiffness or sore joints. The physical therapist gave us some pencil grips to help her hold her pencil correctly. And some ideas for exercises at home.
We're so thankful that God has given us access to these services for free until she's an adult.
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