After returning my nephews to their house and picking up Egypt, we drove straight up to Portland for the OT session. I was worried that it would be a repeat of last week. He fell asleep in the car ride up. Never a good sign. But he seemed alert when we went in and had many things to share with Camille. I sat in for the first 20 minutes and he did an awesome job listening and trying out the exercises. Some of them are very difficult for him because they require some upper body strength. He didn't complain once and each time Camille asked him to do it again, he did. I left for a bit to talk to the speech path about possible services and to ask her opinion of how to deal with this school situation. She has never worked in the school system but we talked with a PT who has been in public school and told me that I needed to lay out the reasons why it wouldn't work and them tell them "these are the circumstances that I will accept your services." I loved that. I want her to come with me! They keep saying ' oh you're in charge. Whatever the parent wants, it's your decision.' That's a bunch of hooey. What happens when you disagree with them is they bring in a table full of people all on their side and you show up bombarded with reasons why you need to listen to them. The wording she gave me was perfect for retaining control of Holland's education. If they're not going to provide speech by coming to our house, then I'm not going to accept their services. I would love to not have to pay for something, but it doesn't look like we'll make any improvements because the school speech path is only looking at the incorrect way he's making the words and not the underlying problem.
So say a little prayer on Thursday when I go in to face all the big wigs of the school district. After all, I'm just a mom who has no idea what the best thing for her son is (insert sarcasm if you didn't already).