So we went to the ER to have him checked out. They did blood work and all his levels were within normal range. The ER doctor called our physician to ask what to do. We ended up reducing the dose on one medicine and omitting another medicine altogether. He thought maybe the two were interacting and causing the trembling and hallucinations he was experiencing. Last week I had made an appointment with this doctor to discuss his current doses and see if we needed to change anything. He is, afterall, 10 and hitting the age when hormones are going to kick in. After speaking with him and examining Hunter, he believed he was having seizures. The word didn't even stick when he said it. I didn't understand. I thought the medicines he is taking were reacting, but he said after talking and looking back on his history of meds that the medicines were not the cause. They actually could have been preventing the seizures. It turns out that two of the medicines he's been on to treat Bipolar were actually anti-seizure medications. So if he in fact is having seizures, the medicines were actually helping to prevent them.
He faxed in a request for an EEG up at Emanuel (it's like a second home now) and I made an appointment as soon as we got home. July 2nd. 10:15. It will be what is called a "sleep-deprived" EEG. They want to monitor brain activity and the best way is on less sleep. I'm thankful that we got an appointment so quickly and Holland will be happy that there's no poking involved.
Speaking of poking, I almost forgot one of the best things that happened last night in the ER. If you follow my blog at all, you know that my mom pays Holland $5 every time he has blood work done. In the beginning it was me and about 4 nurses trying to hold him down to draw blood. It was awful. My mom had the brilliant idea of paying him each time to see if he would calm down. Since money is his "love language", it worked like a charm! So we're sitting in the ER room and the doctor said they were going to do some blood work and he got this look of terror in his eyes. He was already upset and jumpy and hearing the words "blood work" did not go over well. He asked gramma if she would pay him for having the blood work and she said yes. She gave him the $5 and he asked since he was in the hospital if he could have another $5 afterwards. She didn't have it on her, but assured him that he would get the money. When our phlebotomist came in (not a nurse, a phlebotomist!) and she heard the story of the payment plan, she took $5 out of her pocket and gave it to Holland! He had the biggest grin on his face. He'll never forget getting 5 dollars from the "grandma" at the hospital!
1 comment:
oh, wow- lots of stuff going on over here. scary!
great idea, the $5.
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