Happy Adoption Day!

Ten years ago today, we signed papers that completed our adoption of Hunter. I was looking for a picture of us at the courthouse with the judge, but can't find it. That was before digital pictures, so who knows where the hard copy is. But he's three months here, the same age when we finalized.

Every year we celebrate his Adoption Day with a special treat. He can choose something fun to do or a special gift. One year we went to Bullwinkle's to play and this year he saw a skateboard marked 60% off (gotta love Fred Meyer's clearance sales!) I think the first couple years when he was really young, we just went to parks and I got him books. I think I was going to do that every year - a book. But as is typical with me, I start a good plan and never finish it. (See yesterday's post for evidence of that).

Workboxes

Here I go with another attempt at being organized. Don't you do that? You start something thinking it will help you simplify things and then it's either too complicated or you forget to do it. That's me - I forget to do it. I have notebooks with behavior charts; cards for chores or a calendar for schoolwork. Hopefully this time, this method will stick.

My sister found something on a Yahoo homeschooling group about something called "Workboxes" based on Sue Patrick's book. The idea is neat - you organize all your child's work into plastic bins and when they're done, they just proceed to the next task. Great. But my house is not that big and I don't have a separate area that I feel I could dedicate to that many boxes. I'd start to feel like we were a warehouse. So this mom came up with a brilliant idea of putting all the work into one plastic box and she put hanging file folders inside. The blogger on Ruby Slippers School posted her idea and had great pictures to show how she did it. Each time the child finishes a task, s/he puts up the velcro picture and moves on to the next file. This has helped greatly in answering that tired old question, "how much more school are we doing?" and I can point to their box and they can see what's left. Since I am doing more light school during the summer, I wanted to add some chores that they could do as well. I haven't made a separate system for that yet, but they so need some consistency in that department. That might be in the works. But I laminated pictures of certain chores they needed to do once they finished so many files of work. (this link shows you what it looks like, but I found it at walmart for $25 and on amazon it's $40!) And I stuck trampoline breaks, or playing outside or reading with me in there, too! We used it for the first time last week and it worked so well. They got done with their work quicker, Egypt has her own art projects to do and then we were able to plan out other things like going to the park or a cooking project in the afternoon. We took the week off this week for Vacation Bible School, but plan to start it up again next week. Gotta keep those brains fresh!

A Memorable 40th

Who would think that I would be in the ER - again - on my 40th birthday? Or that I would have a migraine to go along with that? Super-Hero took the kids to church so they wouldn't miss out on their new classes. But during Sunday School, Holland told his teacher he wasn't feeling well and he was shaking all over. They came home and then my mom called and told me to have super-hero bring the kids over so I could rest. She called later to see how I was doing (still had the migraine. Hadn't heard from the on-call dr. for medicine). She told me that Holland was shaking really bad and complaining of things crawling on him. This wasn't the first time I'd seen that. He has woken in the middle of the night screaming that bugs and spiders are in his room or are crawling all over him. I reassure him that there's nothing there, but he doesn't believe me.

So we went to the ER to have him checked out. They did blood work and all his levels were within normal range. The ER doctor called our physician to ask what to do. We ended up reducing the dose on one medicine and omitting another medicine altogether. He thought maybe the two were interacting and causing the trembling and hallucinations he was experiencing. Last week I had made an appointment with this doctor to discuss his current doses and see if we needed to change anything. He is, afterall, 10 and hitting the age when hormones are going to kick in. After speaking with him and examining Hunter, he believed he was having seizures. The word didn't even stick when he said it. I didn't understand. I thought the medicines he is taking were reacting, but he said after talking and looking back on his history of meds that the medicines were not the cause. They actually could have been preventing the seizures. It turns out that two of the medicines he's been on to treat Bipolar were actually anti-seizure medications. So if he in fact is having seizures, the medicines were actually helping to prevent them.

He faxed in a request for an EEG up at Emanuel (it's like a second home now) and I made an appointment as soon as we got home. July 2nd. 10:15. It will be what is called a "sleep-deprived" EEG. They want to monitor brain activity and the best way is on less sleep. I'm thankful that we got an appointment so quickly and Holland will be happy that there's no poking involved.

Speaking of poking, I almost forgot one of the best things that happened last night in the ER. If you follow my blog at all, you know that my mom pays Holland $5 every time he has blood work done. In the beginning it was me and about 4 nurses trying to hold him down to draw blood. It was awful. My mom had the brilliant idea of paying him each time to see if he would calm down. Since money is his "love language", it worked like a charm! So we're sitting in the ER room and the doctor said they were going to do some blood work and he got this look of terror in his eyes. He was already upset and jumpy and hearing the words "blood work" did not go over well. He asked gramma if she would pay him for having the blood work and she said yes. She gave him the $5 and he asked since he was in the hospital if he could have another $5 afterwards. She didn't have it on her, but assured him that he would get the money. When our phlebotomist came in (not a nurse, a phlebotomist!) and she heard the story of the payment plan, she took $5 out of her pocket and gave it to Holland! He had the biggest grin on his face. He'll never forget getting 5 dollars from the "grandma" at the hospital!

Hard Work Finally Pays Off

It's been about 9 months since starting the gluten-free lifestyle for Holland. So many recipe experiments gone bad and some successes. He had a blood recheck for his gluten levels to determine if they're still low. We want to be able to introduce gluten-free oats (he lived on oatmeal before being diagnosed). I got a call from the doctor's office yesterday and it finally feels like all my hard work has paid off. When we started, his levels were in the 120's; the first blood level check he was at 31, so a huge drop. Now he's at 19! We're going to try oats again and hopefully his levels will stay low enough for him to tolerate it. He's worked so hard - put up with all the bad tasting gluten-free food. Now he can eat a big bowl of oatmeal that will be doctored up with brown sugar and cinnamon!

I'm turning the big 4-0 this year. On Sunday, my mom surprised me with a concert to see Andre' Rieu. She made a little crossword puzzle that was supposed to give me clues to figure it out. After finding parking and making our way up to the nosebleed section, we got to enjoy the wonderful orchestra and tenors. All the gals wore these amazing dresses, but it was so hard to see anything, even with the big screens. You just didn't feel connected to the performers. Then during intermission, an usher came up and asked if we were together (we were sitting in two rows). I asked if he was going to let us move down closer. There were so many seats even in the two sections below us. He then gave us tickets to the floor! We got to sit in row 9 for the rest of the concert. It was amazing to be up that close and see the costumes. We even had balloons fall on us towards to end. It was a great early birthday gift.

Let Summer Begin!

Yesterday was Romania's last day of school. I took him to the bus stop as usual, but then about 10.15, I packed up a picnic blanket and Holland and Egypt and headed out to the school for an afternoon of games, food and fun. The weather was kind of chilly when we first got there, but by the time the day was over, it was a little too warm. Plus there's no shade, so you're stuck being hot.

The kids did different games that the older kids put together and rotated from station to station. Then they had a BBQ that the local phone company hosted. They brought out big grills and guys to cook hamburgers and hot dogs. After lunch the kids got ice cream and we did a little cleaning in Romania's classroom. The kids got their yearbooks and signed them for each other. By the end of our 4 hours there, Holland was so wiped out. He wore totally the wrong clothes and was hot the entire time. When I said, "Can you believe it? You're not in 2nd grade anymore!" he answered, "that was a long time to be in 2nd grade."

But I already have stuff planned for this summer. We have two church camps we're attending; a week at the cabin and three days at a family camp for children with JRA. The kids are so excited about this. It's completely free and they have tons of activities lined up for the kids. I also get to work in doctor appointments and a little school. I know. Give them a break, right? Wrong! There's a couple reasons why I continue to do "light" school through the summer. First, Holland especially, needs to continue or he would lose too much by the start of 5th grade. Second, they would all kill each other and just sit and watch tv all day. In my next couple posts, I'm going to show you what I've done to make our school time easier, more organized and more fun for the kids.

Busy Day

Today was spent mostly at the hospital for two doctor appointments. I somehow managed to make an appointment with Holland's gastroenterologist and Egypt's rheumatologist on the same day. Even at different times! I never could have planned that so carefully if I had tried. After dropping Romania at the bus stop and then quickly gathering some distractions and snacks for the hospital, we drove up and had a valet park our van. I tell you. Whoever invented that was a genius. How easy is that? You drive up to a curb. A nice guy gives you a little ticket and goes and parks your car.

Holland's doctor was even on time. Just gotta give him more Miralax and some rice bran. He's not having stomach aches, but doc said he's still backed up. Ugh. He asked if Holland had any questions and he actually remembered that he might get to start eating oatmeal now. We have to get blood work done to see where his gluten levels are at. If they're still low, we can introduce real oatmeal - the catch is it has to be gluten free. Betch'a didn't know there was such a thing as gluten free oatmeal? Well, Bob's Red Mill has it. No fake oatmeal (none of those tasty Quaker packets). I don't even think those are real oats. Gluten free oatmeal actually looks like what real oatmeal should look like. The taste is a little different and it takes longer to cook, but we doctor it up with brown sugar and cinnamon.

So after seeing this doctor, we go back to the valet, get our van and drive over to the next office building (the main hospital) and I went one time around the parking garage, found no spots and then drove up to the next set of valets and handed over my car again. What's great about this is it's complimentary. We got another parking stub and walked into Diagnostics to wait until our check-in time. My parents met us there and my dad took Holland so he wouldn't be stuck at the hospital all afternoon. They ran some errands and got lunch. We got Egypt checked in and then the nurse got us to do all the vitals and talk about the procedure. I was sure she'd be more scared than last year because she was 3 1/2. The nurse let her pick the flavor for the mask (bubblegum) and then the doctor came in and I signed a bunch of forms and he talked about the risks. He was fairly certain it would just be the one joint, but she had been complaining of her left knee hurting, so he said he'd check that while she was out. The whole thing lasted less than 10 minutes. I was in the gift shop buying her some books when the doctor came in and said it was over. We got to go back to the room and be there when she woke up. She almost sat straight up and we had to lay her back down. She got a popsicle and a wagon ride to the car.

We have a follow up in four weeks to check the joint, but so far, it looks good. The doctor said "just a quiet afternoon" before she went in. Then he kinda laughed when he said this while watching her bounce around the room. It didn't take her long to want to run and play. She makes a horrible sick person. It's very deceiving :-)

Rheumatologist Today

I took Egypt to see her Rheumatologist today up at Emanuel. Our last appointment was three months ago and we are supposed to come in more often to check her mouth/jaw, finger joints and just to see how her knee is holding up. She was so goofy today. I'm glad that the doctor enjoys that. She wore this Horton Hears a Who elephant mask from a game she has. She kept making elephant sounds. Holland was not amused at all until she said something like "elephants make poop!" Then he started cracking up. It has been one year since her first injection and she will finally be needing her second injection next week. The doctor said he could only fit two fingers under her knee while trying to press it down and today he could fit his whole hand. She also continues to have a longer femur on her right leg and was actually bothered when he tried to bend her leg while she was laying on her tummy. She complains so little that it's surprising that her knee is so bent. I think she just keeps getting used to not being able to move it and doesn't complain about the pain. So we are scheduled for next Monday. Glad it's sooner than later.

Then on the way home, to top off the morning, I got a ticket for changing lanes in a construction zone. If you know Portland, it's one big construction zone. Super-Hero has a little sign at his office that says "There are two seasons in Oregon: Winter and construction". I didn't even know that there way anything going on. I only drive this road when I'm going up to the hospital. Totally felt like a trap (I saw two other people getting tickets at the exact same spot as me). There are no workers, no trucks, no signs of anything happening. Yup. Looks like construction to me. I emailed Super-Hero to drive over there tonight and look for those mysterious signs that I missed.